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Dignity as a Design Requirement

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01 · Executive Overview

Executive Summary

This isn't an AI case study. It's the project that taught me the design principles I now apply to every AI system I build, under stakes higher than any dashboard metric.

Product / Initiative

A care coordination app for cancer patients, built from the ground up: scheduling, care team messaging, treatment plan comprehension, and ongoing lifestyle support.

My Role

Sr. Product Design Lead, partnered with one of the most mature dedicated UX research organizations I've worked inside.

Business Context

MSK needed a unified digital front door across a large hospital network, replacing fragmented tools and phone-based processes for patients mid-treatment.

User Problem

Patients navigating cancer treatment faced a fragmented digital experience that added cognitive and emotional burden at the worst possible moment.

Strategic Opportunity

Prove that "clarity is care" has measurable product value, that UX investment here isn't a satisfaction-score exercise, it's a clinical-experience requirement.

My Contribution

Built the end-to-end experience within a mature research org, and pushed the team toward emotional-state-aware design patterns that the clinical/IT default wouldn't have produced on its own.

Outcomes & Impact

A calmer, clearer patient experience spanning scheduling, care team communication, and treatment tracking. More durably: this project is the origin of the design conviction that now defines my AI/UX work, that legibility and respect for a person's agency under cognitive load is the same design problem, whether the stressor is chemotherapy or an opaque algorithm.

Visual Language
#CC8330 Primary action (Next / Done)
#A689EE Emotional / mood accent
#E4CCB4 Warm card tone
#E5E5E5 Soft neutral canvas
Interaction Principles
  • Warm terracotta instead of clinical blue for primary actions: a deliberate move away from "hospital software" toward something a person would want to open on a hard day.
  • A single accent (lavender) reserved for emotional/mood elements only, so feeling states read as distinct from clinical data entry, never confused with it.
  • Soft, rounded cards and generous whitespace throughout. Density is the enemy when the reader is cognitively overloaded.
Visual Design Language
Scale

Mood-check icons and primary buttons are sized generously, larger than a typical clinical form would call for, because the people using this are often stressed, fatigued, or operating one-handed from a hospital bed. Scale here isn't decorative, it's an accessibility decision disguised as a style choice.

Visual Hierarchy

The emotional check-in appears first and largest, ahead of any clinical field, in every flow where both exist. That ordering is a deliberate stance: how someone is feeling gets asked before what their symptoms are, because the two aren't equally urgent to the person answering, even if they're equally urgent to the care team reading the data later.

Balance

In Systems Thinking, the caregiver content-model spec and the full patient/caregiver flow map are sized as equal partners on the page, not one subordinate to the other. That equal visual weight is intentional: the caregiver's experience isn't a footnote to the patient's, it's a parallel system that needed its own equally-weighted design attention.

Contrast

Warm terracotta sits against a soft, deliberately low-contrast canvas instead of the harsh clinical blue-on-white most healthcare software defaults to. Lowering the baseline contrast of the canvas itself, not just swapping the accent color, is what actually changes how "clinical" the product feels at a glance.

Gestalt Principles

Symptom entry and its severity slider sit close enough to read as one grouped action, proximity doing the work of a label. Between unrelated modules, like symptom logging and appointment scheduling, the layout uses a full section break rather than just a divider line, so someone in a fragile state is never left guessing whether two nearby elements are related.

02 · Framing the Problem

Whose definition of "care coordination" wins?

This isn't an AI product, but the ambiguity at the start will look familiar to anyone who's tried to align a team around a new AI feature: everyone had a different definition of success.

"Care coordination" meant different things to different stakeholders, and nobody had reconciled them into one coherent experience. IT wanted a portal. Clinical staff wanted fewer phone calls. Patients wanted to feel some sense of control over a process that had taken control away from almost every other part of their lives.

The assumption I had to challenge was the efficiency reflex: the belief that fewer clicks and more automation are automatically the right answer. In most software, that's true. In this context, sometimes a slower, more explicit step is the more respectful, safer choice for someone in crisis.

This person is going through something serious, and the interface is not allowed to add to that burden. Clarity is care. Simplicity is respect.

Moving the team from a vague mandate ("digitize hospital processes," an IT-systems lens) to a usable product experience meant reframing the goal in human terms: reduce the burden on a person mid-crisis. Same underlying features (scheduling, messaging, treatment tracking), but a completely different set of design requirements once the lens changed.

I include this project in a portfolio of AI work deliberately. The stressor here was cancer treatment, not an unexplainable algorithm, but the design problem is identical: when a system makes decisions that affect a person under real cognitive load, transparency, pacing, and control aren't UX nice-to-haves. They're the product.

01 Emotional check-in, before anything clinical
02 Symptom log with severity, not just presence
03 Tiered routing: logistics direct, significant news to care team
04 Completion affirms progress, not just data received

The daily flow, diagrammed. The fork at step three is the whole design thesis: not every piece of information deserves the same speed or the same weight on the way back to the person who logged it.

03 · Decision Stories

Key Design Decisions

Three forks in the road, each one weighing a product or growth instinct against what patients under treatment actually needed.

DECISION 01 Clinical checklist vs. emotional-state-first symptom capture
The Fork

The clinical and product default was a symptom checklist modeled on paper intake forms: list symptoms, check boxes, done.

Options Considered
  • A pure clinical checklist: fast to build, familiar to clinical stakeholders.
  • Emotional-state-first entry: ask how the person is doing before or alongside symptoms.
  • Skip emotional capture entirely and infer wellbeing from clinical data alone.
Tradeoffs

A pure checklist is efficient and easy for care teams to parse, but it treats the patient as a data source rather than a person, and misses non-clinical distress signals that predict someone disengaging from the app entirely. Full emotional framing risks feeling unfocused or therapy-app-like if the care team has no way to act on that data.

Final Direction

Emotional state captured first, as a normal part of daily entry, feeding into the severity and context of physical symptoms rather than replacing clinical data collection.

Why

Research showed disengagement from the app correlated with patients feeling unseen, not with objective log complexity. Meeting the emotional reality first raised the odds someone even completed the clinical part of the entry.

DECISION 02 Maximize engagement vs. respect cognitive load
The Fork

Product growth instinct pushed for more frequent push notifications and reminders, to drive the daily-engagement metric leadership tracked.

Options Considered
  • Aggressive daily push notifications, maximizing the engagement metric.
  • No proactive reminders at all: respects autonomy, but risks missed appointments and medications.
  • Cadence tuned to treatment phase, with the frequency itself under the patient's control.
Tradeoffs

Aggressive notifications drive short-term engagement numbers, but for a population already managing treatment-related anxiety, more interruptions read as pressure, not support, and risked people disabling notifications entirely, losing the channel exactly when an urgent appointment change mattered most. Zero reminders under-serves patients who are cognitively overloaded and genuinely need the support.

Final Direction

Cadence tied to treatment phase and stated preference, with an explicit "how much do you want us to check in" control surfaced directly to the patient.

Why

I chose to protect the channel's long-term trust over a short-term engagement number. Putting the frequency control in the patient's hands restored a sense of agency that the rest of the treatment experience often removes.

DECISION 03 Full transparency vs. tiered clinical disclosure
The Fork

Should test results and clinical notes appear directly in-app the moment they're available, or route through a care team conversation first?

Options Considered
  • Full transparency: everything visible in-app immediately.
  • Fully gated: all clinically significant information goes through a phone call first.
  • Tiered disclosure: logistics surfaced immediately, clinically significant news flagged with a required care-team touchpoint.
Tradeoffs

Immediate full transparency can mean a patient discovers serious news alone, mid-day, with no support present: a real emotional-safety risk. Fully gated disclosure preserves the clinical ritual but recreates the "waiting anxiously for a callback" problem the app was supposed to solve in the first place.

Final Direction

Tiered: routine logistics (appointments, scheduling, general treatment plan) surfaced directly and immediately. Anything clinically significant flagged as available, paired with a required care-team touchpoint rather than a bare data dump.

Why

Directly informed by the research team's guidance on patient psychological safety. The app's job was to remove friction from logistics, not to replace the human moment required for weighty clinical news.

04 · Evidence

Research & Customer Insights

MSK's UX research organization was one of the most mature I've encountered, doing deep qualitative and quantitative work grounded directly in patient behavior.

Signal came from dedicated qualitative studies with patients under active treatment, clinician feedback from care teams, and engagement/drop-off analytics segmented by treatment phase.

Signal

Disengagement from daily logging correlated with patients feeling unseen, not with how long or complex the log itself was.

Design Response

Directly shaped Decision 01: leading with emotional state rather than a clinical checklist.

Signal

Research into notification fatigue showed patients disabling alerts entirely after a burst of low-value reminders, losing the channel for the moments that actually mattered.

Design Response

Directly shaped Decision 02: putting cadence control in the patient's hands instead of optimizing purely for engagement.

05 · How Thinking Changed

Product Evolution

From a generic patient-portal model to a burden-aware companion, built in response to what research kept surfacing.

Generic pattern Symptom checklist
Fatigue
Nausea
Pain
Fever
Submit
What shipped Emotional state, then symptoms
How are you feeling today?
Fatigue severity
Nausea severity
Continue

The starting point, diagrammed. A generic symptom checklist treats every entry as a data point. Leading with a mood check reframes the same fields around a person, not a form. That's the shift behind Decision 01.

Iteration 1: emotional context added to logging. Introduced after early research signal on disengagement tied to feeling unseen, not log complexity.

Iteration 2: patient-controlled notification preferences. Built once fatigue research showed the risk of losing the channel entirely to over-notification.

Iteration 3: tiered clinical disclosure model. Developed jointly with research and clinical stakeholders to balance immediacy against psychological safety.

Before

A "digitized hospital process" mental model, efficient for the institution, indifferent to the person using it.

After

A burden-aware companion, logistics handled with minimum friction, significant news handled with maximum care.

06 · Beyond One Feature

Systems Thinking

The patterns built here weren't scoped to one screen. They had to hold consistently across an entire hospital network's worth of touchpoints.

Reusable Pattern

Emotional-State-First Capture

A data-collection pattern that asks how someone is doing before asking what's wrong, reused consistently across scheduling, logging, and lifestyle modules.

Reusable Pattern

Patient-Controlled Cadence

Putting frequency and intensity of proactive contact under user control, not just system defaults: a pattern I now recognize as an early form of consent-scope design.

Governance / Trust

Tiered Information Disclosure

A structural principle (not everything should surface at the same speed or with the same weight) that echoes directly in how I design uncertainty and consent patterns in AI systems today.

Keeping the same tone and clarity standard across scheduling, messaging, and lifestyle modules, spanning the whole hospital network and not one feature silo, is what made "clarity is care" a system property instead of a slogan on one screen.

Full patient and caregiver experience flow: entry points, account creation, login, the Jasper Health intake process, and JH tools
The full map. Patient and caregiver experience mapped as two parallel tracks: entry points, account creation, login, the full intake process, and the tools that follow. This is what "spanning the whole hospital network" actually looks like end to end, not just a phrase in a case study.
Annotated spec for the MSK caregiver content model: basic vs. eligible access and the care team invitation flow
The caregiver track, specified. Caregivers aren't just a second login for the patient's account. They get their own content model. "Basic" access unlocks a limited feature set until the patient invites them onto the care team; what a caregiver sees is gated by their actual relationship to the care, not a generic account type. Content model and full flow map are both systems-level decisions, not one-screen fixes.
07 · The Work

Final Experience

What shipped, and why each choice reduces burden rather than just looking calm.

MSK daily health tracker: symptom logging and vitals flow
Emotional state first, not as a symptom, as a person
Severity and context captured, not just presence
Completion affirms progress, reduces treatment anxiety
My Role Sr. Product Design Lead
Problem Cancer patients navigating treatment faced a fragmented digital experience that added cognitive and emotional burden at the worst possible moment.
Outcome A more understandable and supportive digital experience, giving patients clearer ways to manage appointments, communicate with care teams, and stay oriented during treatment.

Why emotional state first works: it treats the person, not the symptom, as the subject of the interaction, and it's the reason people kept completing entries when a purely clinical checklist would have seen them disengage.

Why severity-and-context capture works: it gives care teams the nuance to triage properly instead of reacting to a binary symptom-present flag, without asking the patient to write a clinical narrative on their worst days.

What This Taught

The stakes of poor UX are never just usability scores. In healthcare, in finance, in any domain where the system touches people's real lives, design is a form of responsibility. You build it like it matters, because it does.

08 · Looking Back

Reflection

What I Learned

"Clarity is care" isn't a tone-of-voice guideline. Its operational meaning is measurable in reduced cognitive burden, captured in things like completion rates, disengagement patterns, and notification fatigue, not just satisfaction scores.

What I'd Improve

I'd want more longitudinal outcome data connecting these design changes to patient-reported stress and treatment adherence, beyond the engagement window I had direct visibility into at the time.

How This Changed My Thinking

This project is the origin of my core AI-era conviction: when systems make decisions that affect real people under stress, transparency and control aren't UX nice-to-haves. They're the product.

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